【He Kokua Lapaau】He Leta Mahalo

"Ma ka ʻaoʻao o ka manaʻolana no kā mākou ʻohana ʻelua, ʻo ʻoe ka mea i hāʻawi mai iā mākou i ka manaʻolana hou. Mahalo mākou no ka hoʻolako ʻana i kā mākou keiki i nā mea hou aʻe. Ma hope o ka ʻoki ʻana, ua hoʻopakele ʻoe i ʻelua ʻohana, a ʻaʻole hiki ke loaʻa kēia mau hoʻololi paʻakikī me ke kōkua ʻole o kāu kōkua. ʻO ka hōʻike ʻana o ka naʻau mai kahi leka mahalo mai kahi makua o ka mea maʻi.

Ua hele mai ʻo Xuanxuan lāua ʻo Chenchen, e noho ana ma Zibo City, i ka Halemai Nuolai no ka mālama pū ʻana. Ua loaʻa nā keiki ʻelua i ka epilepsy a me ke kīnā o ka naʻau ma muli o nā pilikia hānau a me ka nele o ka oxygen i ka wā hānau. I loko o nā makahiki, ua ʻimi nā mākua o kēia mau keiki ʻelua i ke kōkua lapaʻau ma kahi mamao. I loko o kēia kaʻina hana, ua loaʻa iā lāua ka pōmaikaʻi o ka hui ʻana, a ua kākoʻo a paipai nā ʻohana ʻelua ma ke ala.

"I ka piha ʻana o Chenchen i 3 mau makahiki, ʻike wau i kāna hyperactivity. Ma hope o kona hoʻomaka ʻana i ke kula haʻahaʻa, ua hoʻomaka kāna hyperactivity e hoʻopilikia i ke aʻo maʻamau o ke kumu. ʻAʻole wale ia, i ka 10 o kona mau makahiki, ua hoʻomaka ʻo Chenchen i ka loaʻa ʻana o ka maʻi epileptic koʻikoʻi. , Ua lawe au iā ia i nā kauka like ʻole a ua hoʻāʻo i nā lāʻau lapaʻau he nui, akā, ʻaʻohe o lākou i loaʻa i kahi hopena akā, ua ʻoi aku ka maʻi o kona ʻano, a ua hoʻopilikia ʻia i kona hiki ʻana i ka ʻōlelo," i hoʻomanaʻo ai ka makuahine o Chenchen me kahi hiʻohiʻona pilikia ma kona mau helehelena. ma luna o ka ʻumi makahiki o ka ʻimi ʻana i ke kōkua olakino.

"E pili ana i ka robotic stereotactic neurosurgery, ua kānalua wau i ka wā mua. Akā, ua lohe au aia nā keiki mai ko mākou wahi kūloko i hana i kēia ʻoki a ʻike i ka holomua maoli ma hope. No laila, ua hoʻoholo wau e hele pū me ka ʻohana o Xuanxuan. manaʻolana, makemake wau e hoʻāʻo no kaʻu keiki," i hoʻohui ai ʻo ia me ka manaʻo paʻa.

"Ua hoʻomaka ʻo Xuanxuan e hele ma hope o nā keiki ʻē aʻe i kona wā ʻōpiopio, a i ka makahiki 6, ua hoʻomaka ʻo ia e loaʻa pinepine i ka epileptic seizures, kahi i hoʻopilikia nui ai i kona ʻike. aka, i na manawa a pau a makou e hooki ai i ka laau, e hoi hou mai ana na ma'i i na makahiki, aole i loaa ia'u ka hiamoe malu o Xuanxuan i ke aumoe, a i na ahiahi apau, noho au ma kona aoao, me ka makau o ia. e hōʻeha paha iā ia iho i ka wā o ka hopu ʻana," wahi a ke kupuna wahine o Xuanxuan, ua piha kona mau helehelena i ka ʻeha puʻuwai i kona nānā ʻana i kāna moʻopuna.

I Nowemapa 2023, ua hoʻokō maikaʻi ka hui o Polofesa Tian Zengmin i ka mālama ʻana no Xuanxuan a me Chenchen. I ke kolu o ka lā ma hope o ka ʻoki ʻana, "ʻaʻole i loaʻa iā Xuanxuan kahi maʻi maʻi mai ka wā o ka hana ʻana. ʻO kēia mau pō ʻelua i hala aku nei nā pō maluhia loa aʻu i loaʻa ai i loko o hoʻokahi ʻumi makahiki," ʻo ke kupuna wahine o Xuanxuan me ka hauʻoli i kaʻana like i kona hauʻoli me nā limahana. "Mai ka wā o ka ʻoki ʻana, manaʻo wau ua lilo koke ʻo Chenchen i mea noʻonoʻo. Ua hoʻomaikaʻi ʻia kona ʻike, a ʻoi aku ka maikaʻi o kāna mau hana ma mua, "i ʻōlelo ai ka makuahine o Chenchen, e nānā ana i kāna kaikamahine me ka ʻakaʻaka hoʻomaha.

He papa hoʻomanaʻo, he moʻolelo, he leka mahalo. ʻO ka mea a lākou e hōʻike nei, ʻaʻole wale ka mahalo o nā ʻohana o ka poʻe maʻi i nā limahana lapaʻau akā ʻo kā lākou hōʻoia pū ʻana i ka hui a Professor Tian Zengmin a me ka papahana "Hope Hou" a Nuolai. Hōʻike ia i ko lākou ʻike ʻana i ka ʻenehana lapaʻau a me ka pae lawelawe o Nuolai.

Mai ka makahiki 2019, ua hoʻokumu ʻo Shandong Waiwai a me Health Group, me ka China Health Promotion Foundation a me ka Shandong Provincial Disabled Persons Federation, i ka papahana kōkua "Sharing Sunshine - Caring for Disabled Children" a me ka "New Hope" national cerebral palsy children's. pāhana pono lehulehu. I kēia manawa, ua hāʻawi kēia mau papahana kōkua lehulehu i nā lawelawe lapaʻau i ʻoi aku ma mua o 20,000 mau keiki, ua mālama maikaʻi ʻia ma luna o 1,300 mau keiki me ka lolo lolo, a ua uhi ʻia he 11 mau panalāʻau a me nā kaona, me Xinjiang, Tibet, a me Chongqing.

ʻO ke kōkua o ka lehulehu no nā keiki me ka lolo maʻi he kumu nui ia o kēia au a e pōmaikaʻi ai nā hanauna e hiki mai ana. Hoʻokomo ikaika ʻo Shandong Waiwai a me Health Group i nā hana pono lehulehu no nā poʻe kīnā, e hōʻike ana i ke kuleana pilikanaka o nā ʻoihana aupuni. E hoʻomau ka Pūʻulu i ka ʻimi ʻana i nā hiʻohiʻona hou o ke kōkua pono o ka lehulehu, e hoʻoikaika mau i ka hoʻomohala kiʻekiʻe o ka ʻoihana palekana pilikanaka, e hoʻonui i ka mālamalama i nā kānaka, a e hiki ai i nā poʻe ke lilo i kukui iā lākou iho.