A Imfashanyo yo kwa muganga】 Ibaruwa yo gushimira

"Mu gihe cyo kwiheba ku miryango yacu yombi, ni wowe waduhaye ibyiringiro bishya. Twishimiye guha umwana wacu amahirwe menshi. Bitewe n'ubuhanga buhebuje bw'ubuvuzi ndetse n'ubuvuzi bwitondewe nyuma yo kubagwa mu bitaro bya Nuolai, umwana wacu amaze gutera imbere cyane nyuma yo kubagwa Wakijije imiryango ibiri, kandi izi mpinduka zose zatsinzwe ntizashoboraga kubaho utabifashijwemo Hano, turashimira abakozi bose bo mubuvuzi bwubwonko bwubuvuzi bwa Nuolai ... "Ibi imvugo ivuye ku mutima iva mu ibaruwa yo gushimira yatanzwe n'umubyeyi w'umurwayi.

Xuanxuan na Chenchen, bombi batuye mu mujyi wa Zibo, baje mu bitaro bya Nuolai kwivuriza hamwe. Abana bombi barwaye igicuri n'ubumuga bwo mu mutwe kubera ibibazo byo kuvuka no kubura ogisijeni mu gihe cyo kubyara. Mu myaka yashize, ababyeyi b'aba bana bombi basabye ubufasha bwa muganga kure. Muri iki gikorwa, bagize amahirwe yo guhura, kandi imiryango yombi yashyigikiraga kandi itera inkunga murugendo.

"Igihe Chenchen yari afite imyaka 3, nabonye afite ubukana bukabije. Amaze gutangira amashuri abanza, hyperactivite yatangiye kugira ingaruka ku myigishirize isanzwe ya mwarimu. Ntabwo aribyo gusa, ubwo yari afite imyaka 10, Chenchen yatangiye gufatwa n'igicuri gikomeye. Mu myaka yashize. , Nagiye kumujyana ku baganga banyuranye kandi ngerageza imiti myinshi, ariko nta n'umwe muri bo wagize ingaruka. Ahubwo, ubuzima bwe bwarushijeho kuba bibi, ndetse bigira ingaruka no ku bushobozi bw'ururimi rwe ", nk'uko nyina wa Chenchen yibukije afite imvugo iteye ubwoba mu maso, abitekerezaho. mu myaka icumi yo gushaka ubuvuzi.

"Ku bijyanye na robotic stereotactic neurosurgie, nabanje gushidikanya. Icyakora, numvise ko hari abana bo mu karere kacu bari barabazwe kandi babonye ko hari byinshi byahindutse nyuma. Nahisemo rero kuzana n'umuryango wa Xuanxuan. Nubwo haba hari akajagari. ibyiringiro, ndashaka kubigerageza ku mwana wanjye, "yongeyeho yiyemeje.

"Xuanxuan yatangiye kugenda nyuma kurusha abandi bana akiri muto, kandi afite imyaka 6, atangira gufatwa n'indwara ya epileptic, ibyo bikaba byaragize ingaruka zikomeye ku bwenge bwe. Jye na data twamujyanye ku baganga batandukanye, maze yandikirwa imiti, ariko igihe cyose twahagaritse imiti, igicuri cyagaruka. Mu myaka yashize, sinigeze nsinzira nijoro mu mahoro, Xuanxuan yakunze gufata igicuku mu gicuku, kandi buri mugoroba, ndaguma iruhande rwe, ntinya ko we. ashobora kwikomeretsa mu gihe cyo gufatwa, "nyirakuru wa Xuanxuan, mu maso he huzuye umubabaro mwinshi yitegereza umwuzukuru we.

Mu Gushyingo 2023, itsinda rya Porofeseri Tian Zengmin ryatsindiye neza kubaga Xuanxuan na Chenchen. Ku munsi wa gatatu nyuma yo kubagwa, "Xuanxuan ntabwo yigeze arwara kuva iki gikorwa. Muri iri joro ryakeye ryakeye nijoro ryamahoro nagize mu myaka icumi ishize", nyirakuru wa Xuanxuan yishimye cyane asangira n'ibyishimo n'abakozi. Nyina wa Chenchen, yitegereza umukobwa we amwenyura, ati: "Kuva babagwa, ndumva Chenchen yarushijeho kumvikana. Ubwumvikane bwe bwarushijeho kuba bwiza, kandi uko yabyitwayemo neza kurusha mbere."

Icyapa cyo kwibuka, inkuru, ibaruwa yo gushimira. Icyo batanga ntabwo ari ugushimira imiryango y’abarwayi ku bakozi b’ubuvuzi ahubwo ni ukwemeza itsinda rya Porofeseri Tian Zengmin ndetse n’umushinga "Ibyiringiro bishya" bya Nuolai. Irerekana ko bamenye tekinoroji yubuvuzi ya Nuolai nurwego rwa serivisi.

Kuva mu mwaka wa 2019, Itsinda ry’imari n’ubuzima rya Shandong, ku bufatanye n’umushinga w’iterambere ry’Ubushinwa n’ishyirahamwe ry’abafite ubumuga bo mu Ntara ya Shandong, ryatangije umushinga w’ubufasha bwa "Sharing Sunshine - Kwita ku bana bafite ubumuga" hamwe n’abana "bafite ibyiringiro bishya" by’abana bafite ubumuga bw’ubwonko bw’igihugu; umushinga rusange. Kugeza ubu, iyi mishinga ifasha abaturage imaze gutanga serivisi z’ubuvuzi ku bana barenga 20.000, ivura neza abana barenga 1.300 bafite ubumuga bw’ubwonko, kandi igera ku ntara 11 n’amakomine, harimo n’Ubushinwa, Tibet, na Chongqing.

Imfashanyo rusange ifasha abana bafite ubumuga bwubwonko nimpamvu ikomeye yiki gihe kandi igirira akamaro ab'igihe kizaza. Itsinda ry’imari n’ubuzima rya Shandong ryitabira cyane ibikorwa by’imibereho myiza y’abafite ubumuga, ryerekana inshingano z’imibereho y’ibigo bya Leta. Itsinda rizakomeza gushakisha uburyo bushya bw’imfashanyo y’imibereho myiza y’abaturage, rihore riteza imbere iterambere ryiza ry’inganda z’ubwiteganyirize, rizana umucyo mwinshi ku bantu, kandi ritume abantu benshi bahinduka amatara ubwabo.