Taimakon Cerebral Palsy | "Sabon Bege" Aikin Jin Dadin Jama'a Na Kasa Na Taimakawa Yarinya Mai Ciwon Kwakwalwa a Xinjiang

Ƙauna tana sa mutane su ji ɗumi da motsi; yana kunshe da fahimtar mutane da kuma sanin alheri. Ya ratsa ta cikin halin ko-in-kula da kyama a duniya, ya ketare iyakokin kabilanci, yana ba da damar soyayya ta ci gaba da yaduwa da ci gaba a cikin hadin kan kasa, ta dawwama har abada.

Yarinyar mai murmushi mai suna Haili Admuwail, 'yar asalin jihar Xinjiang ce mai kyau. Tana da shekara 11, tana da kyawawan manyan idanuwa biyu. A lokacin da ya kamata ta kasance mai hazaka, raye-raye, kuma ba ta da laifi, rayuwarta ta yi fama da cutar palsy, wanda ya haifar da rashin haɓakar kwakwalwa da kuma raunin motsi a gabobinta. Sakamakon haka, rayuwarta kamar ta yi asarar launukan da suka dace.

“Lokacin da Haili na da wata takwas, zazzabi ya kama ta, tun daga lokacin, a hankali ta zama ta bambanta da sauran yaran na yau da kullun, ta kasance a hankali wajen koyon magana, motsin gabobinta ya kara tsananta a tsawon lokaci, sai da ta gama. 'yar shekara biyu da aka gano tana fama da ciwon sankara, wani babban rauni ne a gare mu babban iyali." Ta kalli Haili dake gefenta, wata kasala amma bak'in ciki na gani ya mamaye fuskar mahaifiyar Haili. Watakila gajiya da matsi na rayuwa ne ya sa wannan matashiyar uwa ba ta da fa'ida sosai.

A halin yanzu, yaduwar cutar sankarau a tsakanin yara masu shekaru 0-6 a cikin kasarmu yana tsakanin 0.19% zuwa 0.4%. A yankuna masu nisa na arewa maso yammacin kasar Sin, yawan kamuwa da cutar sankarau a kananan yara ya kai kashi 0.56%. Saboda talaucin gida, iyalai da yawa sun rasa hanyoyin samun kuɗi don kula da yara masu fama da nakasa. Bugu da ƙari, ƙarin iyalai sun yi imanin cewa cutar ta cerebral ba za a iya warkewa ba, don haka iyalai da yawa za su iya zaɓar su daina. Sakamakon haka, wasu yaran da ke fama da ciwon kwakwalwa sun rasa mafi kyawun lokacin jiyya, wanda ke haifar da nakasu na tsawon rayuwa.

"Mun koyi game da shirin ba da taimako ga cutar sankarau ta Likitan Noulai ta ofishin hulda da jama'a na Xinjiang da ke birnin Beijing. A inda muke zaune, yakan dauki sa'o'i daya ko biyu a mota kafin mu fita, sannan a kwana da yawa a cikin jirgin kasa. namu tuni sun daina jinyar 'ya'yansu.

"Sannu, nurse sisters, sannu aunties likita, na gode!" Duk da kasancewarta ’yar shekara 11 da ke fama da ciwon sikila, Haili ta iya bayyana ra’ayinta sarai a garin Mandarin: “Ina son cin gurasar da mahaifina yake toya, kuma ina so in samu lafiya nan ba da jimawa ba.” Haili na fuskantar kamara, kullum murmushi take, idanunta na annuri da kwarjini da karfi.

Rashin watsi, rashin kasala, juriya a ƙarshe yana kawo bege. Bayan kwanaki da dama suna juye-juye, Haili da mahaifiyarta sun isa gindin Dutsen Tai, a cibiyar kula da lafiya ta Noulai, inda suka samu taimako da kulawa. Bayan wasu shirye-shiryen tuntubar juna da gwaje-gwaje, Farfesa Tian Zengmin, babban kwararre kan cututtukan jijiya a asibitin Noulai, da tawagarsa sun yi wa Haili tiyatar ceto.

"Dabarunmu na amfani da tsarin robotic na neurosurgical don taimakawa a cikin aikin tiyata na kwakwalwa maras kyau. Mun sami nasarar kammala aikin tiyata sama da 20,000. Ƙarƙashin ƙananan ƙananan ne kawai, kawai 2-3 millimeters, kuma dukan aikin yana ɗaukar kimanin minti 30 kawai. Aikin tiyata yana da lafiya sosai. , don Allah ki huta ki jira yaronki ya fito." A wajen dakin tiyatar, Farfesa Tian Zengmin ya yi wa mahaifiyar Haili bayanin tiyatar da aka yi, inda ya taimaka mata wajen rage fargaba.

Fata koyaushe yana tare da jira, kuma canje-canje a Haili bayan tiyata suna da kyau sosai. "Yatsun ta sun fi na baya sassauci, kafafunta sun fi na da. Yanzu ta iya kokarin tsayawa ta zauna ita kadai, ban taba tsammanin samun ci gaba mai mahimmanci irin wannan ba. Na gode duka." Ɗaukakawar da aka samu ya kawo wani dogon murmushi ga mahaifiyar Haili, wadda ta nuna matukar godiyarta a cikin ɗan jinkirin Mandarin, cike da tashin hankali.

Kafin a yi mata tiyata: Maganar Haili ba a bayyana ba kuma ba ta da kyau, kuma tana da sautin tsoka da yawa a gabobinta, wanda hakan ke haifar da matsala wajen motsi na sama da na kasa.

Bayan tiyatar: Larurar magana ta Haili ta ƙara fitowa fili kuma ta yi kyau fiye da da, kuma sautin tsokar da ke cikin ƙananan gaɓoɓinta ya ragu idan aka kwatanta da baya. Ƙari ga haka, ta iya tsayawa na dogon lokaci.

Ayyukan taimakon na iya zama kamar ƙanƙanta, amma ya ƙunshi kulawa tsakanin ɗaiɗaikun ɗaiɗaikun mutane, musamman kulawar al'umma da tallafawa yaran da ke fama da ciwon kwakwalwa. Yayin da furcin godiya na iya zama kaɗan, suna ɗauke da motsin rai na gaske daga dangin yaran da abin ya shafa.

Marubucin Bayahude Elie Wiesel ya taɓa cewa, “Kishiyar kyau ba ƙazanta ba ce, rashin kulawa ce; kishiyar bangaskiya ba bidi’a ba ce, rashin ko’ina; kishiyar rayuwa ba mutuwa ba ce, ko-in-kula ce. Tare da ɗan ƙarin fahimta, ɗan ƙarin kulawa, ƙarancin rashin damuwa, da ƙarancin tsaro, na iya ƙarin mutane masu tausayi su shiga cikin taimako, ba da damar ƙarin yara masu ciwon gurguwar ƙwaƙwalwa don sake samun sabon bege!