Cerebral Palsy Assistance | "Tariro Itsva" National Public Welfare Project Inobatsira Musikana ane Cerebral Palsy muXinjiang

Rudo runoita kuti vanhu vanzwe kudziya uye kusundwa; rinosanganisira kunzwisisa kwevanhu uye kuziva mutsa. Rinobaya nokusakendenga kwenyika nokuzvidza, richipfuura miganhu yedzinza, richibvumira rudo nguva dzose kutenderera nokubudirira pakati pokubatana kworudzi, ruchitsungirira nokusingaperi.

Musikana anonyemwerera anonzi Haili Admuwail, anobva kune akanaka Xinjiang. Pazera remakore gumi nerimwe, ane maziso maviri akanaka. Pazera raanofanira kunge aine tarenda, ane hupenyu, uye asina mhosva, hupenyu hwake hwakafukidzwa necerebral palsy, izvo zvakonzera kusakura zvakanaka kwehuropi uye kusafamba zvakanaka mumakumbo nemaoko. Somugumisiro, upenyu hwake hunoratidzika kuva hwakarasa mavara ahwo akakodzera.

“Apo Haili aiva nemwedzi misere, aiva nefivha yakanyanyisa, uye kubvira ipapo, zvishoma nezvishoma akatanga kusiyana nevamwe vanawo zvavo. makore maviri ekuberekwa kuti ane cerebral palsy Zvakanga zvakandirwadza kuti ndichengete sisi vangu vakuru uye vanin'ina vangu vaviri handigone kushanda, saka tinovimba nababa vake vanotengesa maflatbread mhuri huru." Sezvaakatarira Haili parutivi pake, kusuruvara zvishomanene asi kunocherekedzwa kwakanyura pachiso chaamai vaHaili. Pamwe kwaiva kuneta nedzvinyiriro yeupenyu zvakaita kuti amai vechidiki ava vasanyanye kutaura.

Parizvino, kuwanda kwecerebral palsy pakati pevana vane makore 0-6 munyika yedu kuri pakati pe0.19% kusvika 0.4%. Munzvimbo dziri kure dzekuchamhembe kwakadziva kumadokero kweChina, kuwanda kwecerebral palsy muvana kwakakwira kusvika 0.56%. Nekuda kwehurombo hwemumba, mhuri zhinji dzinoshaya mari yekurapa vana vane cerebral palsy. Uyezve, mhuri dzakawanda dzinotenda kuti cerebral palsy haigoni kurapwa, saka mhuri dzakawanda dzinogona kusarudza kurega. Nekuda kweizvozvo, vamwe vana vane cerebral palsy vanopotsa nguva yekurapa yakakwana, zvichikonzera kuremara kwehupenyu hwese.

"Takadzidza nezvechirongwa cheNoulai Medical cerebral palsy rubatsiro kuburikidza neXinjiang Liaison Office muBeijing. Kwatinogara, kazhinji zvinotora awa kana maviri nemotokari kuti ungobuda, uye mazuva akati wandei muchitima. Mhuri dzakawanda dziri mumamiriro ezvinhu akafanana ne vekwedu vatokanda mapfumo pasi kuti varapwe vana Haili iye akasimba chaizvo, asi anogara achinyemwerera zuva nezuva.

"Maswera sei vanamukoti, mhoroi vana maiguru maita basa!" Pasinei nokuti ari mwana ane makore 11 ane cerebral palsy, Haili anogona kutaura zvakajeka zvaanoda muchiMandarin: "Ndinoda kudya chingwa cheflat chinobikwa nababa vangu, uye ndinoda kupora nokukurumidza." Akatarisana nekamera, Haili anogara achinyemwerera, maziso ake achipenya chivimbo uye simba.

Kusasiya, kusakanda mapfumo pasi, kutsungirira kunounza tariro. Pashure pemazuva akawanda ekuchinja-chinja, Haili naamai vake vakasvika mujinga meGomo reTai, paNoulai Medical Center, kwavakabatsirwa uye kurapwa. Mushure mekutevedzana kwegadziriro dzepamberi dzakadai sekubvunzana uye bvunzo, Purofesa Tian Zengmin, nyanzvi huru yezvirwere zvetsinga paNoulai Medical, neboka rake vakaita kuvhiyiwa kwekununura kwaHaili.

"Maitiro edu anoshandisa neurosurgical robotic systems kubatsira mukuvhiya kweuropi pasina frameless stereotactic. Takabudirira kupedza kuvhiyiwa kwe20 000. Kucheka kwacho kuduku zvikuru, 2-3 millimeters chete, uye nzira yose inotora maminitsi 30 chete. Kuvhiyiwa kwakachengeteka zvikuru. , saka zorora hako womirira mwana wako abude." Kunze kwekamuri rokuvhiyira, Purofesa Tian Zengmin akatsanangura nomutsa kuvhiyiwa kwacho kuna amai vaHaili, vachivabetsera kuderedza kutya kwavo.

Tariro inogara ichiperekedza kumirira, uye shanduko muHaili mushure mekuvhiyiwa dzinoonekwa zvakanyanya. "Zvigunwe zvake zviri nyore kuchinja kupfuura kare, makumbo ake akatwasuka kupfuura kare. Iye zvino anogona kuedza kumira uye kugara pasi ari oga. Handina kumbotarisira kuvandudzika kunokosha zvakadaro. Ndinokutendai mose zvikuru." Kuvandudzwa kwakaitwa kwakaunza nyemwerero yakarasika kwenguva refu kuna amai vaHaili, avo vakaratidzira kutenda kwavo kwakadzama nechiMandarin chinozengurira zvishoma, vakazadzwa nomufaro.

Asati avhiyiwa: Kutaura kwaHaili kwakanga kusina kujeka uye kusina kunyatsojeka, uye akanga ane inzwi rakakwirira remhasuru mumakumbo ake, zvichiita kuti kuomerwe nekufamba kwemakumbo epamusoro nepamusoro.

Mushure mekuvhiyiwa: Matauriro aHaili ekutaura akajeka uye achitsetsenura kupfuura kare, uye inzwi retsandanyama mumakumbo ake ezasi rakaderera kana richienzaniswa nakare. Uyezve, akakwanisa kumira kwenguva yakareba.

Basa rekubatsira rinogona kuita sediki, asi rinosanganisira kutarisira pakati pevanhu, kunyanya kutarisa nerutsigiro rwesosaiti kuvana vane cerebral palsy. Nepo mashoko okuonga angava mashoma, anotakura mirangariro yapachokwadi inobva kumhuri dzevana vakatapurwa.

Munyori wechiJudha Elie Wiesel akamboti, "Zvinopesana nerunako hakusi kushata, kusava nehanya; kunopesana nekutenda hakusi kutsauka, kusava nehanya; kunopesana nehupenyu hakusi rufu, kusava nehanya." Nekunzwisisa kuduku, kutarisira zvishoma, kusava nehanya zvishoma, uye kungwarira zvishoma, vanhu vane tsitsi vakawanda vangatora rutivi murubatsiro, zvichiita kuti vana vakawanda vane cerebral palsy vawanezve tariro itsva!