Zomwe Mnyamata Anachita Koyamba Atagwa Pampikisano Amatamandidwa Pa Intaneti!

M’dziko lofulumirali, pali nthaŵi zina zimene zimakanika pang’onopang’ono batani la kupuma m’mitima mwathu, kutilola kuonanso tanthauzo la kulimba mtima ndi kupirira.

Pampikisano wobwerezabwereza wachinyamata, mnyamata wina dzina lake Aima, yemwe anabadwa ndi matenda a muubongo, mwadzidzidzi analephera kulamulira thupi lake ndipo anagwa kudzanja lamanja pamene ankaimba.

Pomwe aliyense ankaganiza kuti akhoza kutuluka m'bwalo mwakachetechete, chinachake chosayembekezereka chinachitika. Pamene ankagwa, mnyamatayo sanalire ndi ululu, kusonyeza kukhumudwa, kapena kubwerera pansi. M’malo mwake, anangofuula kuti, “Atate.” Bambo ake, omwe anali akuyang'anitsitsa mwakachetechete, adathamangira ku siteji nthawi yomweyo. Aima asanabwerere, mawu ake amphamvu komanso omveka bwino adayambanso kubwereza. Panalibe mantha; kupuma kwake kunali kokhazikika, ndipo kamvekedwe kake kanali kolondola. Omverawo anaomba m’manja.

Pamapeto pake, kuchita bwino kwa Aima wachichepere kudamupatsa mendulo yagolide pampikisanowo.

Aima anapezeka ndi matenda a muubongo ali ndi miyezi isanu ndi itatu. Kuyambira ali wamng'ono, adaphunzirapo za kukonzanso. Tsopano, kuwonjezera pa kuthera maola aŵiri patsiku pochirikiza chizoloŵezi, moyo wa Aima uli ngati wa mwana wina aliyense. Iye ndi wotsimikiza, wodziletsa, ndipo nthawi zonse amakhala pakati pa apamwamba m'kalasi yake. Munthawi yake yaulere, Aima amakonda kuimba, kulemba, kuimba piyano, ndikumanga ndi Legos. Chikondi ndi chichirikizo cha makolo ake sizinam’thandize kokha kugonjetsa zovuta zakuthupi za matenda a muubongo komanso zamupatsa mzimu wosagonja, umene umam’pangitsa kuŵala bwino kwambiri pa siteji ya moyo.

Aima wamng'ono, mnyamata yemwe adagwa pa siteji ndi kubwereranso, watiwonetsa kupyolera muzochita zake kuti chigonjetso chenicheni sichinagwere konse koma kulimbika mtima kuti tidzuke ndikupitirizabe nthawi iliyonse yomwe timachita. Nkhani yake ili ngati ndakatulo yosasunthika, yolimbikitsa aliyense kuti apitirize "kuwerenga" pa siteji ya moyo, mosasamala kanthu za zovuta zomwe akukumana nazo.

Makolo ena amene ali ndi ana amene ali ndi matenda a muubongo amasokonezeka maganizo, amakhala ndi nkhawa, amakhala achisoni komanso amanjenjemera akadziwa mmene mwana wawo alili. Maganizo amenewa akhoza kukhala aakulu kwambiri moti makolo ambiri amavutika kuvomereza zenizeni. Kaŵirikaŵiri amathera zaka zambiri kufunafuna chithandizo chamankhwala, zomwe zimadzetsa ndalama zambiri, koma amapeza kuti zotulukapo zake sizili zabwino. Madokotala akawauzanso kuti panopa palibe mankhwala ochiza matendawa, makolowo akhoza kukhumudwa kwambiri.

Komabe, kafukufuku wachipatala wasonyeza kuti ndi opaleshoni ya panthawi yake ndi chithandizo chamankhwala, pamodzi ndi kulimbikitsidwa kosalekeza m'maganizo kuchokera kwa makolo, ntchito zamagalimoto za ana omwe ali ndi matenda a ubongo amatha kusintha. Kukhoza kwawo kukhala paokha kungawonjezedwenso, kuwapangitsa kuyanjananso ndi anthu ndikukhala ndi moyo wokhutiritsa.

Pofuna kuthana ndi vuto la chithandizo chamankhwala kwa ana omwe ali ndi matenda a ubongo, NuoLai International Medical Center, mogwirizana ndi gulu la akatswiri lotsogoleredwa ndi Pulofesa Tian Zengmin, katswiri wamkulu wa matenda a ubongo, adayambitsa njira yowonongeka. Pogwiritsa ntchito ukadaulo waukadaulo wa robotic brain stereotactic, womwe wapambana mphoto ya National Science and Technology Progress Award (Mphotho Yachiwiri), njirayi imabweretsa kusintha kwaukadaulo pantchito yosamalira olumala.

Ukadaulo umenewu umathandiza madokotala kuti apeze molondola, kufika, ndi kuchiza chotupacho pamene akukonza minyewa ya muubongo. Zimadziwika kuti ndizosasokoneza pang'ono, zolondola, zogwira mtima komanso zotetezeka. Mwa kulunjika mwachindunji ndi kukonza minyewa inayake muubongo, njirayi imapereka njira yatsopano yochizira, imakulitsa magwiridwe antchito a minyewa, ndikuwongolera mkhalidwe wa odwala.

Kuyambira mchaka cha 2019, NuoLai Medical yaphatikiza zida zake kuti iwonetsetse ntchito zachitukuko zomwe cholinga chake ndi kuthandiza anthu ovutika. Iwo akhazikitsa pulojekiti yothandiza ya “Kugawana Kuwala kwa Dzuwa—Kusamalira Ana Olumala” ndi pulojekiti ya “New Hope” yothandiza anthu odwala matenda a ubongo. Kupyolera muzochitikazi, NuoLai Medical yabweretsa chiyembekezo chatsopano kwa mabanja oposa 1,300 a ana omwe ali ndi matenda a ubongo m'dziko lonselo, kuunikira miyoyo yawo ndi kuwala kwa chifundo, ndikuphatikiza luso lachipatala lapamwamba ndi chisamaliro chaumunthu.