Uncedo lweCerebral Palsy | "Ithemba elitsha" iProjekthi yeSizwe yeNtlalontle yoLuntu inceda intombazana eneCerebral Palsy eXinjiang

Uthando lwenza abantu bazive befudumele kwaye bachukumiseke; luquka ukuqonda kwabantu nokubuqonda ububele. Igqobhoza kwihlabathi lokungakhathali nokudelela, ukudlula imida yobuhlanga, ivumela uthando ukuba lujikeleze ngokuqhubekayo kwaye luqhube phakathi komanyano lwesizwe, luhlala luhlala lungenasiphelo.

Intombazana encumileyo ibizwa ngokuba nguHaili Admuwail, ephuma kwi-Xinjiang entle. Kwiminyaka eyi-11, unamehlo amabini amahle amakhulu. Kwiminyaka apho kufuneka abe nesiphiwo, edlamkile, kwaye emsulwa, ubomi bakhe buye bagutyungelwa yicerebral palsy, nto leyo ekhokelele ekukhuleni kakubi kobuchopho kunye nokungasebenzi kakuhle kwamalungu akhe. Ngenxa yoko, ubomi bakhe bubonakala buphulukene nemithetho yabo efanelekileyo.

“Xa uHaili wayeneenyanga ezisibhozo ubudala, wayenomkhuhlane omkhulu, yaye ukususela ngoko, ngokuthe ngcembe waye wahluka kwabanye abantwana abaqhelekileyo. iminyaka emibini ukuba kwafunyaniswa ukuba une-cerebral palsy yayisisibetho esikhulu kuthi funeka ndihoye usisi wam omdala kunye noosisi bam ababini abancinci andikwazi kusebenza, ngoko sithembele kuyise othengisa isonka esicaba intsapho enkulu." Njengoko wayejonge uHaili ecaleni kwakhe, kwavela usizi olubonakalayo ebusweni bukamama kaHaili. Mhlawumbi kukudinwa kunye noxinzelelo lobomi olwenze ukuba lo mama umncinci angakwazi ukuthetha kakhulu.

Okwangoku, ukuxhaphaka kwe-cerebral palsy phakathi kwabantwana abaneminyaka eyi-0-6 kwilizwe lethu kuphakathi kwe-0.19% ukuya kwi-0.4%. Kwiindawo ezikude kumntla-ntshona weTshayina, ukuxhaphaka kwe-cerebral palsy kubantwana kuphezulu njenge-0.56%. Ngenxa yentlupheko yasekhaya, iintsapho ezininzi azinayo imali yokunyanga abantwana abane-cerebral palsy. Ngaphezu koko, iintsapho ezininzi zikholelwa ukuba i-cerebral palsy ayinakunyangwa, ngoko ke iintsapho ezininzi zinokukhetha ukuncama. Ngenxa yoko, abanye abantwana abane-cerebral palsy bayaliphosa elona xesha lonyango, nto leyo ekhokelela ekukhubazekeni ubomi bonke.

"Sifunde ngenkqubo yoncedo lwe-Noulai Medical cerebral palsy nge-Ofisi yoNxibelelwano ye-Xinjiang e-Beijing. Apho sihlala khona, ngokuqhelekileyo kuthatha iyure enye okanye ezimbini ngemoto ukuze uphume, emva koko iintsuku ezininzi kuloliwe. Iintsapho ezininzi kwiimeko ezifanayo owethu sele encamile kunyango lwabantwana babo uHaili unamandla kakhulu nangona enengxaki yokushukuma, unxibe uncumo yonke imihla.

"Molweni bosisi bosisi, molweni, gqirha, enkosi!" Nangona engumntwana oneminyaka eli-11 ubudala onokukhubazeka kwengqondo, u-Haili unokuchaza ngokucacileyo iminqweno yakhe ngesiMandarin: "Ndiyathanda ukutya isonka esisicaba esibhaka utata, kwaye ndifuna ukuba ngcono ngokukhawuleza." Ejongene nekhamera, uHaili uhlala encumile, amehlo akhe ebonakalisa ukuzithemba namandla.

Ukungalahli, ukunganikezeli, ukuzingisa ekugqibeleni kuzisa ithemba. Emva kweentsuku ezininzi zamajiko-jiko, uHaili nonina bafika emazantsi eNtaba iTai, kwiZiko Lonyango laseNoulai, apho bafumana uncedo nonyango. Emva koluhlu lwamalungiselelo angaphambi kokuhlinzwa afana nokubonisana kunye neemviwo, uNjingalwazi uTian Zengmin, ingcali eyintloko kwi-neurological disorders kwi-Noulai Medical, kunye neqela lakhe lenze utyando lokuhlangula uHaili.

"Ubuchwephesha bethu busebenzisa iinkqubo zerobhothi ze-neurosurgical ukuncedisa kwi-frameless stereotactic brain surgery. Siye sagqiba ngempumelelo utyando olungaphaya kwama-20,000. Ukusika kuncinci kakhulu, kuphela i-2-3 millimeters, kwaye yonke inkqubo ithatha kuphela malunga nemizuzu engama-30. Utyando lukhuselekile kakhulu. , ngoko ke qiniseka kwaye ulinde umntwana wakho ukuba aphume." Ngaphandle kwegumbi lotyando, uNjingalwazi uTian Zengmin ngobubele wacacisela umama kaHaili ngotyando, emnceda ukuba athomalalise uvalo.

Ithemba lihlala lihamba nokulinda, kwaye utshintsho eHaili emva kotyando lubonakala kakhulu. "Iminwe yakhe ibhetyebhetye ngakumbi kunangaphambili, imilenze yakhe ithe tye kunangaphambili. Ngoku unokuzama ukuma kwaye ahlale phantsi yedwa. Andizange ndilindele ukuphuculwa okuphawulekayo. Ndiyabonga kakhulu. " Uphuculo olufunyenweyo lwezisa uncumo olude lwalahleka kumama kaHaili, owavakalisa umbulelo ongazenzisiyo ngesiMandarin esithingaza kancinane, ezaliswe yimincili.

Ngaphambi kotyando: Intetho kaHaili yayingacacanga kwaye ingekho kakuhle, kwaye wayenethoni ephezulu yemisipha kumalungu akhe, okukhokelela ekubeni kube nzima ukuhamba kwamalungu aphezulu nangaphantsi.

Emva kotyando: Ukubizwa kwentetho kaHaili kwacaca ngakumbi kwaye ngokutyibilikayo kunangaphambili, kwaye ithoni yezihlunu kumalungu akhe asezantsi yehla xa kuthelekiswa nangaphambili. Ukongezelela, wayekwazi ukuma ixesha elide.

Isenzo soncedo sinokubonakala sisincinci, kodwa siquka inkathalo phakathi kwabantu, ingakumbi ingqalelo yoluntu kunye nenkxaso kubantwana abane-cerebral palsy. Nangona amazwi ombulelo esenokuba mbalwa, athwala iimvakalelo ezinyanisekileyo ezivela kwiintsapho zabantwana abachaphazelekayo.

Umbhali ongumYuda uElie Wiesel wakha wathi, “Isichasi sobuhle asikobubi, kukungakhathali; isichasi sokholo asikokuwexuka, kukungakhathali; isichasi sobomi asikokufa, kukungakhathali. Ngokuqonda ngakumbi, inyameko engakumbi kancinane, ukungakhathali, nokugada okuncinane kancinane, ngaba abantu abanovelwano abangakumbi banokuthabatha inxaxheba kuncedo, nto leyo ebangela ukuba abantwana abangakumbi abane-cerebral palsy bazuze ithemba elitsha!