Usizo Lwe-Cerebral Palsy | "Ithemba Elisha" Iphrojekthi Kazwelonke Yezenhlalakahle Yomphakathi Isiza Intombazane Ene-Cerebral Palsy e-Xinjiang

Uthando lwenza abantu bazizwe befudumele futhi beshukunyiswa; kuhlanganisa ukuqonda kwabantu nokuqaphela umusa. Ibhoboza phakathi kokunganaki nokudelelwa kwezwe, idlule imingcele yobuzwe, ivumela uthando ukuba luqhubeke njalo futhi luthuthuke phakathi kobunye besizwe, lukhuthazele phakade.

Intombazane emomothekayo ibizwa ngokuthi u-Haili Admuwail, ephuma e-Xinjiang enhle. Lapho eneminyaka engu-11 ubudala, unamehlo amabili amahle amakhulu. Enkathini lapho kufanele abe nekhono, aphile, futhi abe msulwa, impilo yakhe isigubuzelwe yi-cerebral palsy, okuholele ekukhulisweni kobuchopho obumpofu kanye nokungasebenzi kahle ezithweni zakhe. Ngenxa yalokho, ukuphila kwakhe kubonakala kulahlekelwe imibala efanele.

"Lapho uHaili enezinyanga eziyisishiyagalombili ubudala, wayenomkhuhlane omkhulu, futhi kusukela lapho, kancane kancane wahluka kwezinye izingane ezivamile. Wayephuza ukufunda ukukhuluma, nokunyakaza kwezitho zakhe kwaba kubi ngokuhamba kwesikhathi. Kwaze kwaba yilapho esekhulile. iminyaka emibili kwatholakala ukuthi une-cerebral palsy Kwaba buhlungu kakhulu kithina kufanele nginakekele udadewethu omdala nodadewethu ababili abancane angikwazi ukusebenza, ngakho sithembele kuyise othengisa isinkwa esiyisicaba umndeni omkhulu." Njengoba ebuka uHaili eduze kwakhe, usizi oluncane kodwa oluphawulekayo lwangena ebusweni bukamama kaHaili. Mhlawumbe kwakuwukukhathala nengcindezi yokuphila okwenza lo mama osemncane angakhulumi kakhulu.

Njengamanje, ukwanda kwe-cerebral palsy phakathi kwezingane ezineminyaka engu-0-6 ezweni lethu kuphakathi kuka-0.19% kuya ku-0.4%. Ezindaweni ezikude ezisenyakatho-ntshonalanga yeChina, ukwanda kwe-cerebral palsy ezinganeni kuphezulu njengo-0.56%. Ngenxa yobumpofu basekhaya, imindeni eminingi ayinayo imali yokwelapha izingane ezine-cerebral palsy. Ngaphezu kwalokho, imindeni eminingi ikholelwa ukuthi i-cerebral palsy ayikwazi ukwelapheka, ngakho imindeni eminingi ingakhetha ukuyeka. Ngenxa yalokho, ezinye izingane ezine-cerebral palsy ziphuthelwa isikhathi sokwelashwa esifanele, okuholela ekukhubazekeni impilo yonke.

"Sifunde ngohlelo losizo lwe-Noulai Medical cerebral palsy ngeHhovisi Lokuxhumanisa i-Xinjiang e-Beijing. Lapho sihlala khona, ngokuvamile kuthatha ihora elilodwa noma amabili ngemoto ukuze nje uphume, bese kuba izinsuku ezimbalwa esitimeleni. Imindeni eminingi esesimweni esifana neso owethu sebeyekile ukulashelwa izingane zabo uHaili yena unamandla kodwa ugqolozele ukumamatheka nsuku zonke.

"Sanibonani bosisi, sanibona bobabakazi bodokotela, ngiyabonga!" Naphezu kokuba ingane eneminyaka engu-11 ubudala ene-cerebral palsy, u-Haili angakwazi ukuveza ngokucacile izifiso zakhe ngesi-Mandarin: "Ngithanda ukudla isinkwa esiyisicaba esibhaka ubaba, futhi ngifuna ukuba ngcono maduze." Ebhekene nekhamera, u-Haili uhlala emamatheka, amehlo akhe ekhipha ukuzethemba namandla.

Ukungalahli, ukungadikibali, ukubekezela ekugcineni kuletha ithemba. Ngemva kwezinsuku ezimbalwa zokusonta, uHaili nonina bafika phansi kweNtaba iTai, eNoulai Medical Center, lapho bathola khona usizo nokwelashwa. Ngemva kochungechunge lwamalungiselelo angaphambi kokuhlinzwa njengokubonisana nokuhlolwa, uProfesa Tian Zengmin, uchwepheshe oyinhloko wezinkinga zemizwa eNoulai Medical, nethimba lakhe benza ukuhlinzwa kokuhlenga uHaili.

"Isu lethu lisebenzisa amasistimu erobhothi e-neurosurgical ukusiza ekuhlinzeni ubuchopho be-stereotactic ngaphandle kwe-frameless. Siqede ngempumelelo ukuhlinzwa kuka-20,000. Ukusika kuncane kakhulu, amamilimitha angu-2-3 kuphela, futhi yonke inqubo ithatha imizuzu engu-30 kuphela. Ukuhlinzwa kuphephe kakhulu. ,ngicela ukhululeke ulinde ingane yakho iphume." Ngaphandle kwegumbi lokuhlinzela, uProfesa Tian Zengmin ngomusa wachazela unina kaHaili ngokuhlinzwa, wamsiza ekudambiseni uvalo.

Ithemba lihlala lihambisana nokulinda, futhi izinguquko eHaili ngemva kokuhlinzwa zibonakala kakhulu. "Iminwe yakhe iyagobeka kakhulu kunakuqala, imilenze yakhe isiqondile kunakuqala. Manje usengazama ukuzihlalela yedwa. Angikaze ngilindele intuthuko ebaluleke kangaka. Ngiyabonga kakhulu." Intuthuko ezuziwe ilethe ukumamatheka okwalahleka kudala kumama kaHaili, owazwakalisa ukubonga kwakhe okujulile ngesiMandarin esasingabaza kancane, egcwele injabulo.

Ngaphambi kokuhlinzwa: Inkulumo kaHaili yayingacacile futhi ingasheleli, futhi wayenemisipha ephakeme ezithweni zakhe, okuholela ekubeni kube nzima ukunyakaza kwezitho ezingenhla nezingaphansi.

Ngemva kokuhlinzwa: Ukuphimisela kwenkulumo kaHaili kwacaca futhi kwashelela kakhulu kunangaphambili, futhi ithoni yemisipha emilenzeni yakhe engezansi yehla uma kuqhathaniswa nangaphambili. Ngaphezu kwalokho, wayekwazi ukuma isikhathi eside.

Isenzo sokusiza singase sibonakale sisincane, kodwa sihlanganisa ukunakekela phakathi kwabantu ngabanye, ikakhulukazi ukunaka komphakathi nokusekelwa kwezingane ezinokukhubazeka kobuchopho. Nakuba amazwi okubonga engase abe mancane, anemizwelo eqotho evela emikhayeni yezingane ezithintekile.

Umlobi ongumJuda u-Elie Wiesel wake wathi, “Okuphambene nobuhle akubona ubunuku, kuwukunganaki; okuphambene nokukholwa akukona ukuhlubuka, kuwukunganaki; okuphambene nokuphila akukhona ukufa, kuwukunganaki. Ngokuqonda okwengeziwe, ukunakekela okwengeziwe, ukungabi nandaba okuncane, kanye nokugada okuncane, kungase abantu abengeziwe abanozwela bahlanganyele osizweni, olwenza izingane ezengeziwe ezinokukhubazeka kobuchopho ziphinde zibe nethemba elisha!