Thandizo la Cerebral Palsy | "Chiyembekezo Chatsopano" Pulojekiti Yadziko Lonse Yothandizira Anthu Imathandiza Atsikana Ali ndi Cerebral Palsy ku Xinjiang

Chikondi chimapangitsa anthu kumva kutentha ndi kukhudzidwa; chimaphatikizapo kumvetsetsa kwa anthu ndi kuzindikira kwa kukoma mtima. Chimadutsa m’kusalabadira ndi kunyozedwa kwa dziko, kupyola malire a mafuko, kulola chikondi kufalikira kosatha ndi kukula pakati pa umodzi wautundu, kupirira kosatha.

Msungwana yemwe akumwetulira amatchedwa Haili Admuwail, wochokera ku Xinjiang wokongola. Ali ndi zaka 11, ali ndi maso akuluakulu okongola. Pamsinkhu woti akuyenera kukhala waluso, wanthanthi, ndi wosalakwa, moyo wake waphimbidwa ndi matenda a muubongo, zomwe zapangitsa kuti ubongo usakule bwino komanso kuti miyendo yake isayende bwino. Chifukwa chake, moyo wake ukuwoneka kuti wataya mawonekedwe ake oyenera.

“Pamene Haili anali ndi miyezi isanu ndi itatu, anali ndi malungo aakulu, ndipo kuyambira pamenepo, pang’onopang’ono anakhala wosiyana ndi ana ena abwinobwino. zaka ziwiri kuti anapezeka ndi cerebral palsy Zinali zowawa kwambiri kwa ife ndiyenera kusamalira mlongo wanga wamkulu ndi ang'ono ake awiri sindingathe kugwira ntchito, choncho timadalira bambo ake kugulitsa flatbread banja lalikulu." Pamene ankayang'ana Haili pambali pake, chisoni chochepa koma chodziwika bwino chinalowa pankhope ya amayi ake a Haili. Mwinamwake kunali kutopa ndi kupsyinjika kwa moyo zomwe zinapangitsa mayi wachichepereyu kukhala wosalankhula kwambiri.

Pakali pano, kufalikira kwa matenda a ubongo pakati pa ana a zaka zapakati pa 0-6 m'dziko lathu kuli pakati pa 0,19% mpaka 0.4%. Kumadera akumidzi kumpoto chakumadzulo kwa China, kufalikira kwa matenda a ubongo mwa ana kumafika pa 0.56%. Chifukwa cha umphawi wapakhomo, mabanja ambiri alibe ndalama zothandizira ana omwe ali ndi matenda a ubongo. Komanso, mabanja ambiri amakhulupirira kuti matenda a ubongo sangachiritsidwe, choncho mabanja ambiri angasankhe kusiya. Zotsatira zake, ana ena omwe ali ndi matenda a ubongo amaphonya nthawi yoyenera ya chithandizo, zomwe zimapangitsa kuti azikhala olumala moyo wonse.

"Tinaphunzira za pulogalamu ya Noulai Medical cerebral palsy yothandizira kudzera ku Xinjiang Liaison Office ku Beijing. Kumene tikukhala, nthawi zambiri zimatenga ola limodzi kapena awiri pagalimoto kuti tituluke, ndiyeno masiku angapo pa sitima. athu asiya kale chithandizo cha ana awo Haili nayenso ali ndi mphamvu zoyenda koma amangomwetulira tsiku lililonse.

"Moni, alongo a namwino, moni, adotolo azakhali, zikomo!" Ngakhale kuti anali mwana wazaka 11 yemwe ali ndi matenda a ubongo, Haili akhoza kufotokoza momveka bwino zofuna zake m'Chimandarini: "Ndimakonda kudya buledi womwe bambo anga amawotcha, ndipo ndikufuna kuchira posachedwa." Poyang'anizana ndi kamera, Haili nthawi zonse amamwetulira, maso ake akuwonetsa chidaliro ndi mphamvu.

Osasiya, osataya mtima, kupirira kumabweretsa chiyembekezo. Patapita masiku angapo akuyenda mokhotakhota, Haili ndi amayi ake anafika m’munsi mwa phiri la Tai, ku Noulai Medical Center, kumene analandira chithandizo ndi chithandizo. Pambuyo pa zokonzekera zokonzekera zisanachitike monga kukambirana ndi kufufuza, Pulofesa Tian Zengmin, katswiri wamkulu wa matenda a ubongo ku Noulai Medical, ndi gulu lake anachita opaleshoni yopulumutsa Haili.

"Njira yathu imagwiritsa ntchito ma neurosurgical robotic systems kuti athandize opaleshoni ya ubongo yopanda stereotactic. Takwanitsa kuchita maopaleshoni oposa 20,000. Njirayi ndi yaying'ono kwambiri, mamilimita 2-3 okha, ndipo ndondomeko yonseyi imatenga mphindi 30 zokha. Opaleshoniyo ndi yotetezeka kwambiri. , choncho musazengereze ndipo dikirani kuti mwana wanu atuluke. Kunja kwa chipinda chochitira opaleshoni, Pulofesa Tian Zengmin mokoma mtima anafotokoza za opaleshoniyo kwa amayi a Haili, kuwathandiza kuchepetsa mantha awo.

Chiyembekezo nthawi zonse chimatsagana ndi kuyembekezera, ndipo kusintha kwa Haili pambuyo pa opaleshoni kumawonekera kwambiri. "Zala zake zimasinthasintha kuposa kale, miyendo yake ndi yowongoka kuposa kale. Tsopano akhoza kuyesa kuima ndi kukhala pansi payekha. Sindinayembekezere kusintha kwakukulu kotereku. Zikomo kwambiri nonse." Kuwongolera komwe kunapezedwa kunabweretsa kumwetulira kwanthawi yayitali kwa amayi a Haili, omwe adathokoza kwambiri m'Chimandarini chozengereza pang'ono, odzazidwa ndi chisangalalo.

Opaleshoni isanachitike: Zolankhula za Haili sizinali zomveka bwino komanso zosamveka bwino, ndipo anali ndi minofu yambiri m'miyendo yake, zomwe zimapangitsa kuti asamayende bwino kumtunda ndi kumunsi.

Opaleshoniyo itatha: Katchulidwe ka mawu ka Haili kanamveka bwino kwambiri kuposa kale, ndipo kamvekedwe ka minofu ya m’miyendo yake ya m’munsi inachepa poyerekeza ndi poyamba. Kuonjezera apo, adatha kuima kwa nthawi yaitali.

Thandizo likhoza kuwoneka laling'ono, koma limaphatikizapo chisamaliro pakati pa anthu, makamaka chisamaliro cha anthu ndi chithandizo cha ana omwe ali ndi matenda a ubongo. Ngakhale kuti mawu oyamikira angakhale ochepa, amakhala ndi malingaliro ochokera pansi pa mtima ochokera kwa mabanja a ana okhudzidwawo.

Mlembi wachiyuda Elie Wiesel ananenapo kuti, “Chosiyana ndi kukongola si kunyansidwa, ndiko kusayanjanitsika; Pokhala ndi chidziŵitso chowonjezereka, chisamaliro chokulirapo, kusalabadira pang’ono, ndi kusamala pang’ono, anthu achifundo owonjezereka angakhalepo ndi phande m’kuthandizira, kutheketsa ana owonjezereka a nthenda ya ubongo kupezanso chiyembekezo chatsopano!